Statement for study participants of the studies taking part in the UK LLC about the use of your data and NHS data for research
As a study member of one of the studies taking part in the UK Longitudinal Linkage Collaboration (UK LLC), you have kindly shared data about yourself with your study to help improve health and wellbeing. Linking the data you give your study with your NHS health records (such as those held by your GP or by the hospital) is important. During the pandemic, your study has used this data to understand why some people are at higher risk of COVID-19, what factors influence recovery and who is missing out on healthcare.
New national plans about a new GP database have raised concerns about data privacy and use.
We want to be clear – the data you share with us, and any links we make with health records, are not part of these NHS plans. We work with the NHS to access copies of your records but do not give study data to the NHS. This may include access to the planned GP database, but only after the ongoing consultation and once any necessary changes have been made.