About us

The UK Longitudinal Linkage Collaboration (UK LLC) is an innovative project developing a new approach for linking well-established longitudinal studies to routine records. It provides a safe and secure virtual space where information collected from these studies can be used in COVID-19 research across the UK.

This work is driven by the Universities of Bristol and Edinburgh, in collaboration with the Universities of Swansea and Leicester. It is part of the COVID-19 Longitudinal Health & Wellbeing National Core Study. The National Core Studies Programme is enabling the UK to use health data and research to inform both our near and long-term responses to COVID-19 as well as accelerating progress to establish a world-leading health data infrastructure for the future.

Longitudinal studies look at groups of individuals or factors and follow them up over time, regularly collecting data on them. The value of longitudinal research lies in collecting a broad range of information then repeating collection at regular intervals. The information allows researchers to investigate the relationship between different things that occur in individuals’ lives and how this can lead to changes in their health and wellbeing or personal circumstances.

Information from each collaborating study will be analysed with information from other studies and linked to whole population health and social records. This will provide greater breadth and depth of information that was previously possible through a single application. Researchers using the UK LLC research database will work to answer priority questions set by the government and from the NHS. The findings will be fed back to help guide policy and health care decisions.

Our values

Passion

We are driven by our passion to build on the UK’s longitudinal research successes and to help ensure these are inclusive of all.

Community

We believe in community. We exist to support our longitudinal research colleagues in their work to improve people’s health and wellbeing now and in years to come.

Transparent

We commit to operate in a transparent way to build trust with the public and longitudinal research volunteers and be clear the ways in which we work are secure and conducted for the public good.

Responsive

Our approach will be responsive, allowing us to make agile choices within the changing research landscape.

Our team

University of Bristol logo

Andy Boyd

Director

Jacqui Oakley

Research Manager

Emma Turner

Senior Data Manager/Research Fellow

The University of Edinburgh logo

Robin Flaig

Deputy Director

Kirsteen Campbell

Comms & Engagement Officer

Christie Levein

Administrator

UCL logo

Dara O’Neill

Data Harmonisation Theme Lead/Senior Research Fellow

Collaborating Studies

The following longitudinal population studies, biobanks/bioresources are part of the UK Longitudinal Linkage Collaboration:

ALSPAC logo
ALSPAC

Avon Longitudinal Study of Parents and Children

1970 British Cohort Study logo
1970 British Cohort Study

Centre for Longitudinal Studies

BORN IN BRADFORD logo
BORN IN BRADFORD

Bradford Royal Infirmary

ELSA logo
ELSA

English Longitudinal Study of Ageing

EXCEED logo
EXCEED

Extended Cohort for E-health, Environment and DNA

GENERATION SCOTLAND logo
GENERATION SCOTLAND

University of Edinburgh

GLAD logo
GLAD

Genetic links to anxiety and depression

Millennium Cohort Study logo
Millennium Cohort Study

Centre for Longitudinal Studies

NEXT STEPS logo
NEXT STEPS

Centre for Longitudinal Studies

NICOLA logo
NICOLA

Northern Ireland Cohort for the Longitudinal Study of Ageing

TRACK-COVID logo
TRACK-COVID

University of Cambridge

TWINS UK logo
TWINS UK

Twins research for a healthy future

UNDERSTANDING SOCIETY logo
UNDERSTANDING SOCIETY

The UK Household Longitudinal Study

1946 NSHD logo
1946 NSHD

1946 National Survey of Health and Development

1958 NCDS logo
1958 NCDS

Centre for Longitudinal Studies

NIHR BIORESOURCE logo
NIHR BIORESOURCE

National Institute for Health Research

How we use your data