Our Promises to Study Participants

We promise to involve study participants.

and members of the public across our operations, from important decisions about how we work, to the research we approve and how we communicate with the public. 

We promise to work to high standards.

This means being transparent in our methods, securing accreditations from independent ethics committees and auditors, and working to the Five Safes framework to enable data to be used for public good research in the UK. 

We promise our Trusted Research Environment does not hold any personal identifiers or allow removal of data.

For example, there are no names or full dates of birth. This means it is highly unlikely any one individual can be identified. The data stays within the TRE, which is based in the UK and may only be accessed by UK-based researchers.

We promise not to sell data, ever.

In future, we may need to cover the costs of running the service by asking researchers to pay a minimal fee to access the TRE.

We promise to always respect relationships.

between our partner Longitudinal Population Studies and their participants, providing a resource that is tailored to the needs of Longitudinal Population Studies.