News
News
UK LLC Citizen Panel paper published in IJPDS
8th Jul 2025
UK Longitudinal Linkage Collaboration (UK LLC) has launched a pioneering Citizen Panel project to involve diverse and often seldom heard members of the public in research governance. This model emphasises mutual learning, open communication, and inclusive decision-making. You can read...
A new era for a wide range of longitudinal health and wellbeing research
1st Jul 2025
Today, UK LLC announces new approvals from NHS providers and UK Government departments meaning linked longitudinal data held in the UK LLC Trusted Research Environment (TRE) can now be used for a wide range of research in the public good. ...
UK LLC protocol paper published in IJPDS
20th Feb 2025
The UK Longitudinal Linkage Collaboration (UK LLC) protocol paper is now published. You can read the full news summary or the full article in the International Journal of Population Data Science (IJPDS) This protocol paper sets out the manual for...
PEDRI blog
7th Jan 2025
Read the latest guest blog from PEDRI where Kirsteen from UK Longitudinal Linkage Collaboration shares her perspectives on PEDRI’s recent roundtable on the role of public involvement in applications for researchers to access data. What is the role of public...
New infographics aim to raise public awareness of their legal rights relating to Longitudinal Population Study data use
18th Nov 2024
UK LLC launches an infographic series to raise awareness among Longitudinal Population Study participants of some of the most important laws and legal principles involved in the use of their data for public good research. The ‘Understanding Longitudinal Population Study...
UK LLC Year 1 Update
19th Jul 2024
UK LLC are delighted to announce that we have now completed the first year of our programme grant and share year 1 updates. A huge thank you to all of our collaborators and who have been involved throughout the past...
The long COVID evidence gap in England
12th Jun 2024
Out of 896 people who reported long COVID to their Longitudinal Population Study, only 5.4% had long COVID diagnoses in their health records. These findings findings by a study published by The Lancet illustrate that 94.6% self-reported long COVID but...
UK LLC poster published in International Journal of Population Data Science
3rd Jun 2024
UK LLC is delighted to share the published proceedings from the UK Health Data Research Alliance Transparency Showcase event last week. Establishing transparency in our processes and decision making at UK LLC is vital to building trust with study participants...
UK LLC in successful Smart Data Research UK funding bid with the University of Bristol
28th May 2024
Thanks to funding from a Smart Data Research UK accelerator scheme, UK LLC are delighted to be working with Dr Anya Skatova, from the University of Bristol, on a joint project to investigate acceptability and governance of linking smart data...
A tribute to Dolapo (Della) Ogunleye
22nd Jan 2024
We were very sad to hear that Della Ogunleye died from breast cancer towards the end of last year. As a member of the UK LLC Public Advisory Group for the last two years, Della brought her smile and her...