News

UK LLC Public Involvement and Engagement paper published in IPJDS

25th Nov 2025

UK Longitudinal Linkage Collaboration (UK LLC) have a new paper published on simplifying legislation on data use for longitudinal study participants. You can read the full news summary or the full article in the International Journal of Population Data Science (IPJDS).

Lead by Kirsteen Campbell, this paper explores how to make complex data legislation more accessible to the people whose data powers research in the public good as a means to drive trustworthiness of the research process.

We have co-developed resources alongside our Public Advisory Group to help study participants better understand the laws and legal principles behind data use in longitudinal research. This work is not only relevant across UK Studies but also adaptable internationally.

Longitudinal population study participants generously share personal data over time, to be used for research in the public good. Yet, the legal frameworks governing this use are often difficult to navigate. This work highlights the importance of transparency and trustworthiness in research, and calls on data providers to do more to raise awareness.

“The ability to link data for research in the public good depends on strong relationships with study participants. That starts with clear, accessible information.”

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UK LLC is now encouraging applications from both longitudinal researchers and analysts who use large datasets as part of their research and are interested in the depth of detail present in linked LPS datasets.

With over 400,000 participant records in the Trusted Research Environment, datasets can be viewed via UK LLC Explore, and UK LLC Guidebook providing a comprehensive user guide and growing set of data documentation. Applications are made via the UK LLC Application System and the UK LLC is currently free to access for early adopters.