Datasets

Study data

The UK has a world-leading portfolio of more than 50 longitudinal population studies (LPS), which have collected detailed phenotypic and biological information on over three million members of the UK public. The UK LLC has so far collated data from more than 20 of these into the TRE for the purposes of COVID-19 research.

Data collected about LPS participants include demographics, education, employment, lifestyle and physical and mental health.

Study	Summary	Coverage	Cohort	Years	Cohort Owner	Website	Data & Documentation
ALSPAC: Avon Longitudinal Study of Parents and Children (ALSPAC)	ALSPAC or Children of the 90s is a multigenerational study of the environmental and genetic factors that affect a person’s health and development.	England	c. 14,000 pregnant women recruited between 1991 and 1992	1991-	University of Bristol	Avon Longitudinal Study of Parents and Children - University of Bristol	Access data and samples - Avon Longitudinal Study of Parents and Children - University of Bristol
Airwave Health Monitoring Study Tissue Bank	The Airwave Tissue Bank is an epidemiological study of police officers and staff in Britain. It was established in 2004 to investigate possible long-term health effects associated with use of TETRA, the personal radio system used by the police service. The cohort now supports broader research into common diseases affecting this well-defined occupational group.	Britain	c. 53000 current and former police officers and staff	2004 +	Imperial College London	Airwave Health Monitoring Study Tissue Bank	Information for Researchers
BCS70: 1970 British Cohort Study (BCS70)	The BCS70 follows the lives of people born in 1970. Data are collected about health, physical, cognitive and social development, education and employment, and home lives.	England, Scotland, Wales	c. 17,000 babies born in a single week of 1970	1970-	University College London	BCS70	CLS - Data access and training (ucl.ac.uk)
BIB: Born in Bradford (BIB)	BiB tracks the health and wellbeing of children from multiple ethnic backgrounds, from pregnancy, through childhood and into adult life, and their parents. BiB collects a wide range of data including health, environmental, educational and genetic.	England	c. 13,5000 children born at Bradford Royal Infirmary between March 2007 and December 2010 and their parents	2007-	Bradford Teaching Hospitals NHS Foundation Trust	Born In Bradford – We are Family	BiB Data Dictionary - Born in Bradford Data Dictionary
ELSA: English Longitudinal Study of Ageing (ELSA)	ELSA collects data from people aged over 50 to understand all aspects of ageing, including physical and mental health, wellbeing, finances and attitudes around ageing.	England	c. 18,000 adults aged 50 years and over, with recruitment ongoing	2002-	University College London	The English Longitudinal Study of Ageing (ELSA)	Data & documentation - The English Longitudinal Study of Ageing (ELSA) (elsa-project.ac.uk)
EPIC Norfolk: The European Prospective Investigation into Cancer (EPIC) Norfolk Study	EPIC Norfolk recruited at 35 GP practices in Norfolk. Data are collected about health, diet and physical activity.	England	c. 30,000 adults aged 40-79 years, recruited 1993-1998	1993-	University of Cambridge	The EPIC-Norfolk Study – The European Prospective Investigation of Cancer, Norfolk	Data Dictionary (epic-norfolk.org.uk)
EXCEED: Extended Cohort for E-health, Environment and DNA (EXCEED)	EXCEED collects information from people about genes and lifestyle to provide insight into environmental influences on long-term health.	England	c. 11,000 adults aged 18 and over, with recruitment ongoing	2013-	University of Leicester	EXCEED – Extended Cohort for E-health, Environment and DNA	For Researchers
FENLAND: The Fenland Study	The Fenland Study investigates the interaction between environmental and genetic factors in determining obesity, type 2 diabetes and related metabolic disorders.	England	12,435 adults born between 1950 and 1975	2005-	University of Cambridge	Fenland Study - MRC Epidemiology Unit (cam.ac.uk)	Information for researchers - MRC Epidemiology Unit (cam.ac.uk)
GENSCOT: Generation Scotland	Generation Scotland collects data about participants and their families to improve the health and well-being of current and future generations.	Scotland	c. 24,000 people aged 12 years and over, with recruitment ongoing	2006-	University of Edinburgh	Generation Scotland - The University of Edinburgh	Access our resources - The University of Edinburgh
GLAD: Genetic Links to Anxiety and Depression (GLAD) Study	The GLAD study explores genetic risk factors for depression and/or anxiety.	UK	c. 40,000 people aged 16 years and over, with recruitment ongoing	2018-	King's College London	Genetic Links to Anxiety and Depression Study – GLAD Study
MCS: The Millennium Cohort Study (MCS)	MCS follows the lives of people born 2000-2002. Data are collected about physical, socio-emotional, cognitive and behavioural development, as well as information about daily life, behaviour and experiences. Both resident parents also contribute data about economic circumstances, relationships and family life.	UK	18,818 babies born in 2000-2002	2000-	University College London	CLS - Millennium Cohort Study (ucl.ac.uk)	CLS - Data access and training (ucl.ac.uk)
NCDS58: 1958 National Child Development Study (NCDS)	The 1958 NCDS follows the lives of people born in 1958. Data are collected about physical and educational development, economic circumstances, employment, family life, health behaviour, wellbeing, social participation and attitudes, including towards retirement and ageing.	England, Scotland, Wales	17,415 babies born in a single week of 1958	1958-	University College London	CLS - 1958 National Child Development Study (ucl.ac.uk)	CLS - Data access and training (ucl.ac.uk)
NEXTSTEP: Next Steps	Next Steps follows the lives of people born 1989-1990. Data are collected about education and employment, economic circumstances, family life, physical and emotional health and wellbeing, social participation and attitudes.	England	c. 16,000 people born between 1989 and 1990 recruited in 2004 when they were in year 9 at school	2004-	University College London	Next Steps	CLS - Data access and training (ucl.ac.uk)
NICOLA: Northern Ireland Cohort for the Longitudinal Study of Ageing (NICOLA)	NICOLA collects data from people aged over 50 to better understand ageing, including physical and mental health, wellbeing, finances and attitudes around ageing.	Northern Ireland	c. 8,500 adults aged 50 years and over recruited 2013-2016, with limited additional recruitment	2013-	Queen's University Belfast	NICOLA - Queen’s University Belfast
NIHRBIO_COPING: National Institute of Health Research (NIHR) BioResource COVID-19 Psychiatry and Neurological Genetics (COPING) Study	NIHRBIO_COPING assesses the impact of COVID-19 on mental and neurological health.	UK	c. 150,000 people aged 16 years and over, with recruitment ongoing	2020-	University of Cambridge	COVID-19 Psychiatry and Neurological Genetics (COPING) study (nihr.ac.uk)
NSHD46: MRC National Survey of Health and Development Cohort/1946 Birth Cohort (NSHD/1946BC)	NSHD is the oldest and longest running of the British birth cohort studies and has informed UK health care, education and social policy.	England, Scotland, Wales	5,362 singleton babies born in March 1946	1946-	University College London	MRC LHA & NSHD	MRC LHA & NSHD :: Data Sharing
SABRE: Southall and Brent Revisited (SABRE)	SABRE is the largest tri-ethnic population-based cohort in the UK, involving European, Indian Asian and African Caribbean people. It investigates the causes of diabetes and disorders of the heart and circulation.	England	4,858 adults aged 40-69 years recruited 1988-1991	1988-	University College London	SABRE Study I Southall and Brent Revisited	Data Sharing I SABRE Study
TRACKC19: TRACK-COVID Study	TRACK-COVID recruited approximately 20,000 people in the community to understand why some have symptoms while others do not. Biological and health data are collected.	England	Approximately 20,000 adults who have previously participated in the INTERVAL, COMPARE and STRIDES BioResource studies	May 2020-Dec 2021	University of Cambridge	The TRACK-COVID Study
TWINSUK: TwinsUK	TwinsUK follows the lives of twins to understand how genetic variation relates to health and ageing. It is the largest adult twin registry in the UK and the most clinically detailed in the world.	UK	c. 15,000 adults who are identical or non-identical twins, with recruitment ongoing	1992-	King's College London	TwinsUK – The biggest twin registry in the UK for the study of ageing related diseases	Our Data – TwinsUK
UKHLS: Understanding Society - the UK Household Longitudinal Study (UKHLS)	Understanding Society collects behavioural, economic, social and genetic data from households to explore the experiences of people living in the UK.	UK	c. 40,000 households recruited in 2009, including 8,000 from the original British Household Panel Survey (BHPS), which ran from 1991-2009	2009-	University of Essex	Understanding Society – The UK Household Longitudinal Study	Data and documentation - Understanding Society

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