Datasets

Researchers based within the UK can apply to access datasets held within the UK LLC TRE. All users will need to be Office for National Statistics Accredited Researchers and provide evidence of up to date research governance GDPR training. Data will be available from January 2022. Our Data Access & Acceptable Use Policy sets out the terms and conditions.

Linked Data

Further information about the Linked Data
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Study Data

Further information about the Study Data
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Linked Data

Further information about the Linked Data
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Linked data

Linked NHS COVID-19 Data available

Primary Care GPES Data for Pandemic Planning and Research

COVID-19 Vaccination Status & COVID-19 Vaccination Adverse Reaction

NPex (pillar 2)

Mental Health Services Dataset

Medicines Dispensed in Primary Care (NHSBSA data)

Hospital Episode Statistics Admitted Patient Care, Critical Care, Outpatients, A&E

Demographics datasetCOVID-19 SARI-Watch (formerly CHESS)

COVID-19 Second Generation Surveillance System (Pillars 1 & 2)

COVID-19 UK Non-hospital Antibody Testing Results (Pillar 3)

Civil Registration – Deaths (England & Wales)

Cancer Registration Data (England & Wales)

All the above are England only, other than where indicated.

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Study Data

Further information about the Study Data
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Linked data

Linked NHS COVID-19 Data available

Primary Care GPES Data for Pandemic Planning and Research

COVID-19 Vaccination Status & COVID-19 Vaccination Adverse Reaction

NPex (pillar 2)

Mental Health Services Dataset

Medicines Dispensed in Primary Care (NHSBSA data)

Hospital Episode Statistics Admitted Patient Care, Critical Care, Outpatients, A&E

Demographics datasetCOVID-19 SARI-Watch (formerly CHESS)

COVID-19 Second Generation Surveillance System (Pillars 1 & 2)

COVID-19 UK Non-hospital Antibody Testing Results (Pillar 3)

Civil Registration – Deaths (England & Wales)

Cancer Registration Data (England & Wales)

All the above are England only, other than where indicated.

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Study data

The UK has a world-leading portfolio of more than 50 longitudinal population studies (LPS), which have collected detailed phenotypic and biological information on over three million members of the UK public. The UK LLC has so far collated data from 24 of these into the TRE for the purposes of COVID-19 research.

Data collected about LPS participants include demographics, education, employment, lifestyle and physical and mental health.

Study Summary Coverage Cohort Years Cohort Owner Website Data & Documentation
ALSPAC: Avon Longitudinal Study of Parents and Children (ALSPAC) ALSPAC or Children of the 90s is a multigenerational study of the environmental and genetic factors that affect a person’s health and development. England c. 14,000 pregnant women recruited between 1991 and 1992 1991- University of Bristol

Avon Longitudinal Study of Parents and Children - University of Bristol

Access data and samples - Avon Longitudinal Study of Parents and Children - University of Bristol

BCS70: 1970 British Cohort Study (BCS70) The BCS70 follows the lives of people born in 1970. Data are collected about health, physical, cognitive and social development, education and employment, and home lives. England, Scotland, Wales c. 17,000 babies born in a single week of 1970 1970- University College London

BCS70

CLS - Data access and training (ucl.ac.uk)

BIB: Born in Bradford (BIB) BiB tracks the health and wellbeing of children from multiple ethnic backgrounds, from pregnancy, through childhood and into adult life, and their parents. BiB collects a wide range of data including health, environmental, educational and genetic. England c. 13,5000 children born at Bradford Royal Infirmary between March 2007 and December 2010 and their parents 2007- Bradford Teaching Hospitals NHS Foundation Trust

Born In Bradford – We are Family

BiB Data Dictionary - Born in Bradford Data Dictionary

ELSA: English Longitudinal Study of Ageing (ELSA) ELSA collects data from people aged over 50 to understand all aspects of ageing, including physical and mental health, wellbeing, finances and attitudes around ageing. England c. 18,000 adults aged 50 years and over, with recruitment ongoing 2002- University College London

The English Longitudinal Study of Ageing (ELSA)

Data & documentation - The English Longitudinal Study of Ageing (ELSA) (elsa-project.ac.uk)

EPIC Norfolk: The European Prospective Investigation into Cancer (EPIC) Norfolk Study EPIC Norfolk recruited at 35 GP practices in Norfolk. Data are collected about health, diet and physical activity. England c. 30,000 adults aged 40-79 years, recruited 1993-1998 1993- University of Cambridge

The EPIC-Norfolk Study – The European Prospective Investigation of Cancer, Norfolk

Data Dictionary (epic-norfolk.org.uk)

FENLAND: The Fenland Study The Fenland Study investigates the interaction between environmental and genetic factors in determining obesity, type 2 diabetes and related metabolic disorders. England 12,435 adults born between 1950 and 1975 2005- University of Cambridge

Fenland Study - MRC Epidemiology Unit (cam.ac.uk)

Information for researchers - MRC Epidemiology Unit (cam.ac.uk)

GENSCOT: Generation Scotland Generation Scotland collects data about participants and their families to improve the health and well-being of current and future generations. Scotland c. 24,000 people aged 12 years and over, with recruitment ongoing 2006- University of Edinburgh

Generation Scotland - The University of Edinburgh

Access our resources - The University of Edinburgh

GLAD: Genetic Links to Anxiety and Depression (GLAD) Study The GLAD study explores genetic risk factors for depression and/or anxiety. UK c. 40,000 people aged 16 years and over, with recruitment ongoing 2018- King's College London

Genetic Links to Anxiety and Depression Study – GLAD Study

MCS: The Millennium Cohort Study (MCS) MCS follows the lives of people born 2000-2002. Data are collected about physical, socio-emotional, cognitive and behavioural development, as well as information about daily life, behaviour and experiences. Both resident parents also contribute data about economic circumstances, relationships and family life. UK 18,818 babies born in 2000-2002 2000- University College London

CLS - Millennium Cohort Study (ucl.ac.uk)

CLS - Data access and training (ucl.ac.uk)

NCDS58: 1958 National Child Development Study (NCDS) The 1958 NCDS follows the lives of people born in 1958. Data are collected about physical and educational development, economic circumstances, employment, family life, health behaviour, wellbeing, social participation and attitudes, including towards retirement and ageing. England, Scotland, Wales 17,415 babies born in a single week of 1958 1958- University College London

CLS - 1958 National Child Development Study (ucl.ac.uk)

CLS - Data access and training (ucl.ac.uk)

NEXTSTEP: Next Steps Next Steps follows the lives of people born 1989-1990. Data are collected about education and employment, economic circumstances, family life, physical and emotional health and wellbeing, social participation and attitudes. England c. 16,000 people born between 1989 and 1990 recruited in 2004 when they were in year 9 at school 2004- University College London

Next Steps

CLS - Data access and training (ucl.ac.uk)

NICOLA: Northern Ireland Cohort for the Longitudinal Study of Ageing (NICOLA) NICOLA collects data from people aged over 50 to better understand ageing, including physical and mental health, wellbeing, finances and attitudes around ageing. Northern Ireland c. 8,500 adults aged 50 years and over recruited 2013-2016, with limited additional recruitment 2013- Queen's University Belfast

NICOLA - Queen’s University Belfast

NIHRBIO_COPING: National Institute of Health Research (NIHR) BioResource COVID-19 Psychiatry and Neurological Genetics (COPING) Study NIHRBIO_COPING assesses the impact of COVID-19 on mental and neurological health. UK c. 150,000 people aged 16 years and over, with recruitment ongoing 2020- University of Cambridge

COVID-19 Psychiatry and Neurological Genetics (COPING) study (nihr.ac.uk)

NSHD46: MRC National Survey of Health and Development Cohort/1946 Birth Cohort (NSHD/1946BC) NSHD is the oldest and longest running of the British birth cohort studies and has informed UK health care, education and social policy. England, Scotland, Wales 5,362 singleton babies born in March 1946 1946- University College London

MRC LHA & NSHD

MRC LHA & NSHD :: Data Sharing

TRACKC19: TRACK-COVID Study TRACK-COVID recruited approximately 20,000 people in the community to understand why some have symptoms while others do not. Biological and health data are collected. England Approximately 20,000 adults who have previously participated in the INTERVAL, COMPARE and STRIDES BioResource studies May 2020-Dec 2021 University of Cambridge

The TRACK-COVID Study

TWINSUK: TwinsUK TwinsUK follows the lives of twins to understand how genetic variation relates to health and ageing. It is the largest adult twin registry in the UK and the most clinically detailed in the world. UK c. 15,000 adults who are identical or non-identical twins, with recruitment ongoing 1992- King's College London

TwinsUK – The biggest twin registry in the UK for the study of ageing related diseases

Our Data – TwinsUK

UKHLS: Understanding Society - the UK Household Longitudinal Study (UKHLS) Understanding Society collects behavioural, economic, social and genetic data from households to explore the experiences of people living in the UK. UK c. 40,000 households recruited in 2009, including 8,000 from the original British Household Panel Survey (BHPS), which ran from 1991-2009 2009- University of Essex

Understanding Society – The UK Household Longitudinal Study

Data and documentation - Understanding Society

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