All posts
All posts
Constellations, challenges and circular perspectives.
Posted on: 11th Aug 2025 | Filed under: Blog
The UK LLC Citizen Panel Hybrid Workshop 2 @Edinburgh Futures Institute, 25 June 2025 Introduction Constellation. What is the first thing that comes to your mind when you hear the word ‘constellation’? I tend to think of the stars in the sky and the star groupings or connections between them,...
Public Good
Posted on: 11th Aug 2025 | Filed under: Blog
Steve shares his thoughts as part of our series of reflections from some of our Citizen Panel members on the second workshop held recently at the Edinburgh Futures Institute, Edinburgh.The series also includes contributions from Lidis (Citizen Panel Lead), Farheen and Sarah. Public Good ‘Public Good?’ I hear you ask:...
Tribute to Dianna Moylan, July 2025
Posted on: 11th Aug 2025 | Filed under: News
We were deeply saddened to hear of the recent death of Dianna Moylan. We pass on our sincere condolences to her family and friends. Dianna was one of our very first public contributors, working with us before we had a formal public involvement programme. Her open, honest and positive approach...
Hats off to Hybrid: Reflections on the one-day UK LLC Citizen Panel meeting 25th August 2025
Posted on: 11th Aug 2025 | Filed under: Blog
Sarah shares her thoughts as part of our series of reflections from some of our Citizen Panel members on the second workshop held recently at the Edinburgh Futures Institute, Edinburgh.The series also includes contributions from Lidis (Citizen Panel Lead), Farheen and Steve. Hats off to Hybrid: Reflections on the one-day...
My journey at the Citizen Panel Workshop # 2
Posted on: 11th Aug 2025 | Filed under: Blog
Farheen reflects on her experience as a Citizen Panel member attending online at the second workshop held recently at the Edinburgh Futures Institute, Edinburgh.The series also includes contributions from Lidis (Citizen Panel Lead), Sarah and Steve. My journey at the Citizen Panel Workshop # 2 At Workshop #2 we got...
Talking with: Olayemi Amusile
Posted on: 25th Jul 2025 | Filed under: Blog
Earlier this week we checked in with Olayemi to find out how she's been getting on since joining us in June and what her experience at UK LLC has involved. This is the second year that we have taken up the opportunity to engage with the Health Data Science Black...
UK LLC Citizen Panel paper published in IJPDS
Posted on: 8th Jul 2025 | Filed under: News
UK Longitudinal Linkage Collaboration (UK LLC) has launched a pioneering Citizen Panel project to involve diverse and often seldom heard members of the public in research governance. This model emphasises mutual learning, open communication, and inclusive decision-making. You can read the full news summary or the full article in the...
My journey to UK LLC’s Public Involvement Programme
Posted on: 1st Jul 2025 | Filed under: Blog
My name is Michael (he/him). In this blog I am going to talk about what I have done as a public contributor for UK Longitudinal Linkage Collaboration (UK LLC). I’ll set out some of what led me to UK LLC (https://ukllc.ac.uk/). I’ll also detail how I have helped with work...
What you can expect from UK LLC when starting a project in their Trusted Research Environment
Posted on: 1st Jul 2025 | Filed under: Blog
In this blog, health data scientist and researcher Joseph Lam, shares his experience of working in the UK LLC Trusted Research Environment and the support received as a user. Joseph’s PhD involves assessing and evaluating data linkage strategies to reduce linkage bias by ethnicity, and improve data equity for missed...
Why new UK LLC linkages to Welsh participant data is great news for research
Posted on: 1st Jul 2025 | Filed under: Blog
In this blog, Emma Turner, UK LLC’s Senior Data Scientist and Research Fellow based at the University of Bristol, talks through the benefits of linking to Welsh NHS records available for research, as the latest data intake into the UK LLC Trusted Research Environment (TRE). NHS Wales data will be...