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Read the latest news, blogs and reports from the UK LLC and across the longitudinal population data community.

All posts

New infographics aim to raise public awareness of their legal rights relating to Longitudinal Population Study data use

Posted on: 18th Nov 2024 | Filed under: News

UK LLC launches an infographic series to raise awareness among Longitudinal Population Study participants of some of the most important laws and legal principles involved in the use of their data for public good research.   The ‘Understanding Longitudinal Population Study Data and the Law’ resources were developed in partnership with...

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Reflections on setting up a Citizen Panel at UK LLC

Posted on: 29th Aug 2024 | Filed under: Blog

In this blog, Dr Lidis Garbovan shares her experience of setting up the first Citizen Panel at UK Longitudinal Linkage Collaboration (UK LLC). Lidis talks about her initial six months with UK LLC where she spent time developing the Citizen Panel concept into a fully formed project plan, how she...

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My first Steering Group meeting

Posted on: 29th Aug 2024 | Filed under: Blog

In this blog, Betty Idemudia shares her experience of attending the inaugural UK LLC Citizen Panel Steering Group meeting. She describes how her lack of prior knowledge led to exploration and learn the concepts around Citizen Panels. Betty describes how her time spent as a Research Assistant for the last...

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My Experience So Far

Posted on: 8th Aug 2024 | Filed under: Blog

In this blog, Betty Idemudia talks about her experience to date as a Research Assistant with UK Longitudinal Linkage Collaboration (UK LLC). Betty joins UK LLC as part of this year’s Health Data Research UK (HDR UK) Black Internship Programme and has been involved in supporting two important areas of...

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UK LLC Year 1 Update

Posted on: 19th Jul 2024 | Filed under: News

UK LLC are delighted to announce that we have now completed the first year of our programme grant and share year 1 updates. A huge thank you to all of our collaborators and who have been involved throughout the past year, we have achieved a lot and look forward to...

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The long COVID evidence gap in England

Posted on: 12th Jun 2024 | Filed under: News

Out of 896 people who reported long COVID to their Longitudinal Population Study, only 5.4% had long COVID diagnoses in their health records. These findings findings by a study published by The Lancet illustrate that 94.6% self-reported long COVID but had no evidence of diagnosis and could therefore reflect unmet...

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UK LLC poster published in International Journal of Population Data Science

Posted on: 3rd Jun 2024 | Filed under: News

UK LLC is delighted to share the published proceedings from the UK Health Data Research Alliance Transparency Showcase event last week. Establishing transparency in our processes and decision making at UK LLC is vital to building trust with study participants and the public.  We are proud to be included in...

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UK LLC in successful Smart Data Research UK funding bid with the University of Bristol

Posted on: 28th May 2024 | Filed under: News

Thanks to funding from a Smart Data Research UK accelerator scheme, UK LLC are delighted to be working with Dr Anya Skatova, from the University of Bristol, on a joint project to investigate acceptability and governance of linking smart data with UK Longitudinal Population Study research. Read the SDR UK...

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A tribute to Dolapo (Della) Ogunleye

Posted on: 22nd Jan 2024 | Filed under: News

We were very sad to hear that Della Ogunleye died from breast cancer towards the end of last year. As a member of the UK LLC Public Advisory Group for the last two years, Della brought her smile and her laugh to every meeting and we will miss that greatly....

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UK Data Service Blog

Posted on: 17th Jan 2024 | Filed under: News

UK Longitudinal Linkage Collaboration Director, Andy Boyd, has written a blog for UK Data Service about the latest developments at UK LLC. The blog outlines the service that the UK LLC delivers as part of the UK’s research infrastructure and the impact this will have on the longitudinal research community:...

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