All posts
All posts
UK LLC Citizen Panel Hybrid Workshop: The iceberg and the view under the waters…
Posted on: 21st Feb 2025 | Filed under: Blog
This blogpost contains Lidis’ impressions about and reflections on the UK LLC Citizen Panel Hybrid Workshop in Birmingham on 31 January 2025. Please also view our other blogs in this mini-series from Salma, Jonathan, Sarah, Farheen, and Alan . Introduction Thinking about an iceberg may lead us to think of...
UK LLC protocol paper published in IJPDS
Posted on: 20th Feb 2025 | Filed under: News
The UK Longitudinal Linkage Collaboration (UK LLC) protocol paper is now published. You can read the full news summary or the full article in the International Journal of Population Data Science (IJPDS) This protocol paper sets out the manual for how UK LLC works. It is important to do this...
PEDRI blog
Posted on: 7th Jan 2025 | Filed under: News
Read the latest guest blog from PEDRI where Kirsteen from UK Longitudinal Linkage Collaboration shares her perspectives on PEDRI’s recent roundtable on the role of public involvement in applications for researchers to access data. What is the role of public engagement in accessing data for research? - PEDRI
New infographics aim to raise public awareness of their legal rights relating to Longitudinal Population Study data use
Posted on: 18th Nov 2024 | Filed under: News
UK LLC launches an infographic series to raise awareness among Longitudinal Population Study participants of some of the most important laws and legal principles involved in the use of their data for public good research. The ‘Understanding Longitudinal Population Study Data and the Law’ resources were developed in partnership with...
Reflections on setting up a Citizen Panel at UK LLC
Posted on: 29th Aug 2024 | Filed under: Blog
In this blog, Dr Lidis Garbovan shares her experience of setting up the first Citizen Panel at UK Longitudinal Linkage Collaboration (UK LLC). Lidis talks about her initial six months with UK LLC where she spent time developing the Citizen Panel concept into a fully formed project plan, how she...
My first Steering Group meeting
Posted on: 29th Aug 2024 | Filed under: Blog
In this blog, Betty Idemudia shares her experience of attending the inaugural UK LLC Citizen Panel Steering Group meeting. She describes how her lack of prior knowledge led to exploration and learn the concepts around Citizen Panels. Betty describes how her time spent as a Research Assistant for the last...
My Experience So Far
Posted on: 8th Aug 2024 | Filed under: Blog
In this blog, Betty Idemudia talks about her experience to date as a Research Assistant with UK Longitudinal Linkage Collaboration (UK LLC). Betty joins UK LLC as part of this year’s Health Data Research UK (HDR UK) Black Internship Programme and has been involved in supporting two important areas of...
UK LLC Year 1 Update
Posted on: 19th Jul 2024 | Filed under: News
UK LLC are delighted to announce that we have now completed the first year of our programme grant and share year 1 updates. A huge thank you to all of our collaborators and who have been involved throughout the past year, we have achieved a lot and look forward to...
The long COVID evidence gap in England
Posted on: 12th Jun 2024 | Filed under: News
Out of 896 people who reported long COVID to their Longitudinal Population Study, only 5.4% had long COVID diagnoses in their health records. These findings findings by a study published by The Lancet illustrate that 94.6% self-reported long COVID but had no evidence of diagnosis and could therefore reflect unmet...
UK LLC poster published in International Journal of Population Data Science
Posted on: 3rd Jun 2024 | Filed under: News
UK LLC is delighted to share the published proceedings from the UK Health Data Research Alliance Transparency Showcase event last week. Establishing transparency in our processes and decision making at UK LLC is vital to building trust with study participants and the public. We are proud to be included in...