UK LLC leaflet supplementary information
You have been directed to this webpage from our conference leaflet. This page aims to provide supplementary information and links to help guide researchers seeking to learn what UK LLC can offer and how to apply.
About UK Longitudinal Linkage Collaboration
UK Longitudinal Linkage Collaboration is the national Trusted Research Environment (TRE) for longitudinal research.
Led by the Universities of Bristol and Edinburgh, in collaboration with UCL, SeRP UK, Swansea University and the University of Leicester, it is a collaborative endeavour with many of the UK’s most established longitudinal studies.
UK LLC’s mission is to provide a data linkage resource to its partner studies and to provide a simple one-application process to UK based researchers applying to access linked longitudinal data.
This unique resource enables cross-sector research and supporting research responses to immediate situations and future policy needs. The greater availability of large scale, diverse linked data will help provide numbers for researchers to study rarer outcomes and seldom reached populations.
UK LLC’s TRE approach helps ensure that data it holds is secure, transparent and subject to the ‘Five Safes’ set of safeguards. The partnership includes a strong public contribution with members of the public and study participants informing decision-making and design.
Quick and Easy to Apply
UK LLC is open to applications from UK based researchers for research in the public good. Applications are through a simple one-application process.
Find out who can apply and more helpful information for researchers such as our services, how to apply, our data access policy and ‘how-to’ guides on working within the TRE.
Apply via UK LLC’s portal on the HDR UK Gateway: UK Longitudinal Linkage Collaboration (UK LLC) (healthdatagateway.org)
Fees
There are no fees to access the data for initial pilot projects during 2023-24
UK LLC Partner Studies
Quick Link! UK LLC datasets and links to partner studies
Airwave Health Monitoring Study
Avon Longitudinal Study of Parents and Children (ALSPAC)
1970 British Cohort Study (BCS70)
Born in Bradford (BIB)
English Longitudinal Study of Ageing (ELSA)
The European Prospective Investigation into Cancer (EPIC) Norfolk Study
Extended Cohort for E-health Environment and DNA (EXCEED)
The Fenland Study
Generation Scotland
Genetic Links to Anxiety and Depression Study (GLAD)
The Millennium Cohort Study (MCS)
1958 National Child Development Study (NCDS)
Next Steps
Northern Ireland Cohort for the Longitudinal Study of Ageing (NICOLA) (non-linked data only)
MRC National Survey of Health and Development Cohort/1946 Birth Cohort (NSHD/1946BC)
National Institute of Health Research (NIHR) BioResource COVID-19 Psychiatry and Neurological Genetics (COPING) Study
Southall and Brent Revisited (SABRE) (non-linked data only)
TRACK-COVID Study
TwinsUK
Understanding Society – the UK Household Longitudinal Study (UKHLS)
LPS data systematically linked with NHS Health data
Quick link! UK LLC linked NHS data
- Demographics
- Civil Registrations of Deaths (England & Wales)
- Cancer Registration Statistics (England & Wales)
- Hospital Episode Statistics (HES) Admitted Patient Care including Maternity, Augmented/Critical Care period and Critical Care
- HES Outpatients
- HES Accident and Emergency
- Emergency Care Data Set (ECDS)
- Mental Health Services Data Set (MHSDS)
- Improving Access to Psychological Therapies (IAPT)
- Community Services Data Set (CSDS)
- Medicines Dispensed in Primary Care (NHSBSA)
- Primary Care GPES Data for Pandemic Planning and Research (GDPPR)
- COVID-19 Vaccination Status
- COVID-19 Vaccination Adverse Reactions
- COVID-19 SARI-WATCH (formerly CHESS)
- COVID-19 Second Generation Surveillance System (SGSS) (Pillar 1 & Pillar 2)
- NPeX (Pillar 2)
- COVID-19 UK Non-hospital Antibody Testing Results (Pillar 3)
All the above are England only, other than where indicated.
A centralised method to access linked data
Our TRE holds records for almost 300,000 participants from more than 20 UK-based LPS, some of which have been collecting data for decades. Our systematically linked data and large combined sample provides the data foundation for a very wide range of public good research.
In addition to the data that our TRE currently holds, plans are well underway to link some studies with environmental data (e.g. air and noise pollution levels, green space availability, property and neighbourhood characteristics) and administrative data (e.g. education, employment, tax and benefits records).
Case Study
Green et al.