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Data Access Register - full project summary

Application ID LLC_0037
Project Title The role of sociodemographic factors in attendance at cancer and cardiovascular disease screening and in delayed cancer diagnosis before, during and after the COVID-19 pandemic in people with severe or complex mental illness.
Lead Applicant Naomi Launders
Organisation(s) Name(s) University College London
Approval Date 20/05/2025
Application Status Approved
Lay Summary

Severe mental illnesses (SMI) like schizophrenia or bipolar disorder or other complex mental illness needing hospital treatment, can make every-day life harder. Adults with these conditions are more likely to have long-term physical health conditions, and are more likely to die young. They may be less likely to go for important health check-ups and are more likely to be diagnosed with cancer at a later stage when it’s harder to treat. We also know that the impact of the COVID-19 pandemic on health services affected some groups more than others.  

For adults with severe or complex mental illness (SCMI), we want to know who is most likely to miss cancer or heart disease screening. We are also interested in who gets diagnosed with cancer through emergency routes rather than visiting their GP. We want to know how screening and diagnosis changed during and after the COVID pandemic for people with SCMI and which groups were impacted most.  

Knowing which groups of people with SCMI are most at risk would allow us to find those who need the most support and who is most likely to be overlooked and why, allowing us to improve screening and diagnosis in people with SCMI. 

Datasets Requested

LPS Data:

  • Avon Longitudinal Study of Parents and Children (ALSPAC)
  • British Cohort Study 1970 (BCS 70)
  • Born in Bradford (BIB)
  • English Longitudinal Study of Ageing (ELSA)
  • European Prospective Inspection into Cancer (EPIC Norfolk)
  • Extended Cohort for E-health, Environment and DNA (EXCEED)
  • Genetic Links to Anxiety and Depression (GLAD)
  • Millennium cohort Study (MCS)
  • National Child Development Study 1958 (NCDS 58)
  • NEXTSTEP
  • NIHRBIO_COPING
  • National Survey of Health and Development 1946 (NSHD 46)
  • TWINS UK
  • UK Household Longitudinal Study (UKHLS)

 

Linked Data Requested

  • Demographics 
  • Civil Registration – Deaths  
  • Cancer Registration Data 
  • HES Admitted Patient Care 
  • HES Outpatient 
  • Mental Health Services Data Set  
  • GDPPR Data for Pandemic Planning and Research (COVID-19) 
  • Covid-19 Vaccination Status 

 

Results & Impact