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Data Access Register - full project summary

Application ID llc_0020
Project Title Quality checks, curation and methodological enhancement of the UK LLC Partner Studies using linked data
Lead Applicant Andrew Wong
Organisation(s) Name(s) University College London
Approval Date 17/06/2022
Application Status Approved
Lay Summary

The UK Longitudinal Linkage Collaboration (UK LLC) has been set up to bring together data from longitudinal population study (LPS) volunteers with their health records. This will allow data managers from studies to check how good the health information they get from their volunteers is. For example, they can look at COVID-19 health records to understand which participants had the disease and how bad it was, and compare it to what people have reported themselves. They will also be able to create new data. For example, they can look into health records of people who have heart disease to understand what type of heart disease it is. Then they can put their participants’ data into more specific categories to see if having a certain type causes you to have worse COVID-19 symptoms. All of this adds value to the study data and cannot be done without access to the health records. Better data means better research, which can lead to improvement in health and wellbeing throughout and beyond the coronavirus pandemic.

Datasets Requested

Study Data

  • NSDH46

 

Linked Data

  • NHS Digital Civil Registrations – Deaths
  • NHS Digital Cancer Registration Data
  • NHS Digital Hospital Episode Statistics Admitted Patient Care
  • NHS Digital Hospital Episode Statistics Admitted Patient Care (Maternity)
  • NHS Digital Hospital Episode Statistics Admitted Patient Care (Augmented/critical care period)
  • NHS Digital Hospital Episode Statistics Critical Care
  • NHS Digital Hospital Episode Statistics Outpatient
  • NHS Digital Hospital Statistics Accident and Emergency
  • Emergency Care Data Set (ECDS)**
  • NHS Digital Mental Health Services Data Set
  • NHS Digital Medicines Dispensed in Primary Care
  • NHS Digital GDPPR Data for Pandemic Planning and Research (COVID-19)
  • NHS Digital COVID-19 Vaccination Status
  • NHS Digital COVID-19 Vaccination Adverse Reactions
  • NHS Digital COVID-19 SARI-WATCH (formerly chess)
  • NHS Digital COVID-19 Second Generation Surveillance System (Pillar 1 & Pillar 2)
  • NHS Digital NPex (Pillar 2)
  • NHS Digital COVID-19 UK Non-hospital Antibody Testing Results (Pillar 3)
Results & Impact