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Data Access Register - full project summary

Application ID llc_0002
Project Title Methodological enhancement and documentary analysis of the UK LLC
Lead Applicant Andy Boyd
Organisation(s) Name(s) University of Bristol
Approval Date 2021-11-29
Application Status Approved
Lay Summary

The UK Longitudinal Linkage Collaboration is a COVID-19 research resource. The data held within this resource is collected from a range of studies across the UK that have data from participants before and during the pandemic.

Bringing this data together in one place and linking it to data from the NHS will help to answer many important research questions, including better understanding long COVID. It will provide information to improve health services and treatments for people with COVID-19.

We need to access the data to be able to create a ‘common language’. This is so data can be compared in a way that is more useful for researchers. We need to understand how well the information has been linked and whether it is accurate. We need to come up with descriptions that will help us understand things like ethnic minority representation and where participants are part of more than one study.

Having access to the data will help us make sure the resource is as accurate, useful and organised as it can be, making sure we’re providing and effective and efficient tool for future research

Datasets Requested
  • National Survey of Health and Development (NSHD, 1946 British Birth Cohort Study
  • Southall and Brent Revisited Study (SABRE) (non-linked data only)
  • English Longitudinal Study of Ageing (ELSA)
  • 1958 National Child Development Study (1958 NCDS)
  • British Cohort Study 1070 (BCS 70)
  • Next Steps
  • Millennium Cohort Study (MCS)
  • Genetic Links to Anxiety and Depression (GLAD) Study
  • Twins UK
  • Track-COVID
  • NIHR BioResource
  • Extended Cohort for E-Health, Environment & DNA (EXCEED)
  • Understanding Society
  • Northern Ireland Cohort for the Longitudinal Study of Ageing (NICOLA)
  • Born in Bradford
  • Generation Scotland

    NHS Digital Covid-19 Datasets (linked datasets for participants in linked studies):

  • Covid 19 Vaccination Status
  • Covid-19 Adverse Reactions
  • GPES Data for Pandemic Planning and Research (COVID-19)
  • NPex (Pillar 2)
  • Mental Health Services Dataset
  • Medicines Dispensed in Primary Care (NHSBSA Data)
  • Hospital Episode Statistics Critical Care
  • Hospital Episode Statistics Admitted Patient Care
  • Hospital Episode Statistics Outpatient
  • Hospital Episode Statistics Accident and Emergency
  • Demographics
  • COVID-19 SARI-WATCH (formerly CHESS)
  • Covid-19 Second Generation Surveillance System (Pillar 1 & Pillar 2)
  • Covid-19 UK Non-hospital Antibody Testing Results (Pillar3)
  • Civil Registration – Deaths (England & Wales)
  • Cancer Registration Data (England & Wales)
  • Electronic Communication of Surveillance in Scotland (ECOSS)
  • Public Health Scotland / NHS Prescription Data (PIS)
  • Public Health Scotland / NHS SMR01
  • Public Health Scotland / NHS Vaccination
Results & Impact