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Data Access Register - full project summary

Application ID LLC_0001
Project Title UK LLC Harmonised Core Socio-demographic Measures Dataset
Lead Applicant Emma Turner
Organisation(s) Name(s) University of Bristol
Approval Date 11/11/2021
Application Status Approved
Lay Summary

Longitudinal research studies, where aspects of people and their lives are logged over time, often record similar information in different ways. This can make it difficult for researchers to use data from more than one study for a research project. This is because they can’t compare the data across studies unless the way in which the data is captured is sufficiently similar.

Our project aims to make changes where needed and where possible to the study data that will allow researchers to combine and use data from different studies. We will only do this where there is an understanding that this change won’t affect the underlying meaning of the data itself. We will focus on measures of demographic and social factors such as age, sex and education. This is because these measures are widely used by researchers, and the output of this work will help them in their scientific investigations.

Datasets Requested

Study Data

  • 1958 NCDS (1958 National Child Development Study)
  • ALSPAC (Avon Longitudinal Study of Parents and Children)
  • Born in Bradford 
  • British Cohort Study 1070 (BCS 70) 
  • ELSA (English Longitudinal Study of Ageing) 
  • EPIC Norfolk
  • EXCEED (Extended Cohort for E-Health, Environment & DNA)
  • Fenland
  • Generation Scotland 
  • Genetic Links to Anxiety and Depression (GLAD) Study 
  • Millennium Cohort Study (MCS) 
  • National Survey of Health and Development 1946 Birth Cohort (NSHD46) 
  • Next Steps 
  • NIHR BioResource COPING 
  • Northern Ireland Cohort for the Longitudinal Study of Ageing (NICOLA) 
  • Southall and Brent Revisited Study (SABRE) (non-linked data only) 
  • TEDS
  • Track-COVID 
  • Twins UK 
  • Understanding Society (UK Household Longitudinal Study) 
Results & Impact