Data Access Register - full project summary
| Application ID | LLC_0026 |
|---|---|
| Project Title | Capturing ethnicity in UK electronic health records and longitudinal studies |
| Lead Applicant | Venexia Walker |
| Organisation(s) Name(s) | University of Bristol |
| Approval Date | 03/02/2025 |
| Application Status | Approved |
| Lay Summary | It is important that records of patient ethnicity are accurate when treatment decisions are based on ethnicity. We aim to analyse ethnicity data which will provide a unique opportunity to compare self-reported ethnicity with NHS coded ethnicity. This should lead to deeper understanding of the data recorded in the UK LLC and lead to recommendations to help inform current NHS policy initiatives and, if needed, activities to improve the recording of patient ethnicity. To do this, we will count how many ethnicity records people have. We will study if records of ethnicity change over time. We will compare ethnicity records from the NHS with ethnicity records from longitudinal research studies. We know that this is a sensitive area so we will have a steering group of experts and ethnically diverse public contributors to support this project. They will help with the study design, the interpretation of results and the development of communication strategies and materials to explain our findings. |
| Datasets Requested | LPS Data:
Linked Datasets:
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| Results & Impact |