Patient & Public Involvement

Involving people with relevant lived experience in research can bring about many benefits, including improving the way that research is conducted, designed, communicated and shared.

One of the UK LLC’s values is to operate in a transparent way to build trust with the public and longitudinal research volunteers participating through the collaborating studies.

This will happen through a variety of involvement methods:

1

The UK LLC Data Access Review Panel will include study participants and/or members of the public who, along with UK LLC staff and study representatives, will be involved in considering applications from researchers to use the data held on the secure research database.

2

The UK LLC Advisory Group is a core group of study participants and/or members of the public who will be recruited from April 2021. This group will meet regularly to be involved in the creation and design of UK LLC operational and communications aspects of our work.

3

The UK LLC Involvement Network is a larger network of lay members of the public who will be recruited from April 2021. This network will be able to support the work of the UK LLC on an ad-hoc basis.

If you’re interested in applying to become part of the UK LLC PPI work, please look out for our recruitment posts via Twitter @UKLLCollab