The UK Longitudinal Linkage Collaboration (UK LLC) is an innovative project developing a new approach for linking well-established longitudinal studies to routine records. It provides a safe and secure virtual space where information collected from these studies can be used in COVID-19 research across the UK.
This work is driven by the Universities of Bristol and Edinburgh, in collaboration with the Universities of Swansea and Leicester. It is part of the COVID-19 Longitudinal Health & Wellbeing National Core Study. The National Core Studies Programme is enabling the UK to use health data and research to inform both our near and long-term responses to COVID-19 as well as accelerating progress to establish a world-leading health data infrastructure for the future.
Longitudinal studies look at groups of individuals or factors and follow them up over time, regularly collecting data on them. The value of longitudinal research lies in collecting a broad range of information then repeating collection at regular intervals. The information allows researchers to investigate the relationship between different things that occur in individuals’ lives and how this can lead to changes in their health and wellbeing or personal circumstances.
Information from each collaborating study will be analysed with information from other studies and linked to whole population health and social records. This will provide greater breadth and depth of information that was previously possible through a single application. Researchers using the UK LLC research database will work to answer priority questions set by the government and from the NHS. The findings will be fed back to help guide policy and health care decisions.
We are driven by our passion to build on the UK’s longitudinal research successes and to help ensure these are inclusive of all.
We believe in community. We exist to support our longitudinal research colleagues in their work to improve people’s health and wellbeing now and in years to come.
We commit to operate in a transparent way to build trust with the public and longitudinal research volunteers and be clear the ways in which we work are secure and conducted for the public good.
Our approach will be responsive, allowing us to make agile choices within the changing research landscape.
Comms & Engagement Officer
The following longitudinal population studies, biobanks/bioresources are part of the UK Longitudinal Linkage Collaboration:
How we use your data